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An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)
Season 1 Episode 156
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicin…
Published on 10 months, 3 weeks ago
An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California
Season 1 Episode 155
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—espec…
Published on 10 months, 4 weeks ago
An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute
Season 1 Episode 154
Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin de…
Published on 11 months ago
An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain
Season 1 Episode 153
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Terry Jo Bichell, PhD, founder and director of CombinedBrain, which advocates for patients with 110 neurogenetic diseases. Dr. …
Published on 11 months, 1 week ago
An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation
Season 1 Episode 152
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN …
Published on 11 months, 3 weeks ago
An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic
Season 1 Episode 151
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dean Wingerchuk, MD, speaks on the potential for treating neuromyelitis optica spectrum disorder (NMOSD) with stem-cell therapy.
Published on 11 months, 4 weeks ago
An Interview With Beloved Huntington Disease Activist Jimmy Pollard
Season 1 Episode 150
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jimmy Pollard, who for the past 38 years has advocated on behalf of people around the world affected by Huntington disease.
Published on 1 year ago
An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS
Season 1 Episode 149
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and welln…
Published on 1 year ago
An Interview With Huntington Disease Patient Activist Tanita Allen
Season 1 Episode 148
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and it…
Published on 1 year ago
An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati
Season 1 Episode 147
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jean Elwing, MD, a professor of medicine and director of the Pulmonary Hypertension Program at Ohio's University of Cincinnati.
Published on 1 year ago