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An Interview With MDA 2025 National Ambassador Lily Sander
Season 1 Episode 166
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Pati…
Published on 8 months, 2 weeks ago
An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa
Season 1 Episode 165
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research fo…
Published on 8 months, 2 weeks ago
An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD
Season 1 Episode 164
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital…
Published on 8 months, 3 weeks ago
An Interview With Clinical Hematologist and Professor Dr. Luke Chen
Season 1 Episode 163
Rare Disease Advisor correspondent Tori Rodriguez interviews clinical hematologist and professor Luke Chen, MD, about IgG4-related disease and how it mimics various malignancies.
Published on 8 months, 4 weeks ago
An Interview With John Anderson, MD, Expert on Hereditary Angioedema
Season 1 Episode 162
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John Anderson, MD, chief research officer at AllerVie Clinical Research, on the complexities of diagnosing and treating heredit…
Published on 9 months, 1 week ago
An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still
Season 1 Episode 161
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to r…
Published on 9 months, 2 weeks ago
An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis
Season 1 Episode 160
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosi…
Published on 9 months, 3 weeks ago
An Interview With Hereditary Angioedema Expert Dr. Timothy Craig
Season 1 Episode 158
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Timothy Craig, DO, a tenured professor of medicine, pediatrics and biomedical sciences at Pennsylvania State University in Hers…
Published on 10 months ago
An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS)
Season 1 Episode 158
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sangeetha Venugopal, MD, assistant professor of clinical medicine at the University of Miami's Sylvester Comprehensive Cancer C…
Published on 10 months, 1 week ago
An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN
Season 1 Episode 157
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and …
Published on 10 months, 2 weeks ago