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An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy
Season 1 Episode 176
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lyza Weisman, who has spinal muscular atrophy type 2, about how she copes with progressive loss of muscle function.
Published on 6 months, 1 week ago
An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders
Season 1 Episode 175
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Len…
Published on 6 months, 2 weeks ago
An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society
Season 1 Episode 174
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patien…
Published on 6 months, 3 weeks ago
An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'
Season 1 Episode 173
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his ne…
Published on 7 months ago
An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD
Season 1 Episode 172
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Li…
Published on 7 months, 1 week ago
An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis
Season 1 Episode 171
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people…
Published on 7 months, 2 weeks ago
An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
Season 1 Episode 170
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.
Published on 7 months, 3 weeks ago
An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
Season 1 Episode 169
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless ad…
Published on 7 months, 3 weeks ago
An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
Season 1 Episode 168
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelina…
Published on 8 months ago
An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in Research
Season 1 Episode 167
Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in…
Published on 8 months ago