Podcast Episodes

An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)

Season 1 Episode 136

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Susan Ward, PhD, founder and executive director of the Collaborative Trajectory Analysis Project (cTAP), which seeks to broaden…

Published on 1 year, 4 months ago

An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls'

Season 1 Episode 135

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Taylor Kane, founder and executive director of 'Remember the Girls.' The charity advocates for female carriers of X-linked rare…

Published on 1 year, 4 months ago

An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS

Season 1 Episode 134

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Jeffrey A. Cohen, MD, of Ohio's Cleveland Clinic on the latest developments in cellular therapies to treat multiple…

Published on 1 year, 4 months ago

An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA

Season 1 Episode 133

Published on 1 year, 4 months ago

An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS

Season 1 Episode 133

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannab…

Published on 1 year, 4 months ago

An Interview With Michelle C. Werner, CEO of Alltrna

Season 1 Episode 132

Published on 1 year, 5 months ago

An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD

Season 1 Episode 131

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the diffi…

Published on 1 year, 5 months ago

An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio

Season 1 Episode 131

Published on 1 year, 5 months ago

An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy

Season 1 Episode 130

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment…

Published on 1 year, 5 months ago

An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou

Season 1 Episode 128

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.

Published on 1 year, 6 months ago