Podcast Episodes

An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida

Season 1 Episode 128

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Du…

Published on 1 year, 6 months ago

An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD)

Season 1 Episode 127

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).

Published on 1 year, 6 months ago

An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis

Season 1 Episode 126

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with u…

Published on 1 year, 6 months ago

An Interview With Sarah Glass, PhD, of the n-Lorem Foundation

Season 1 Episode 125

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.

Published on 1 year, 7 months ago

An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis

Season 1 Episode 124

Published on 1 year, 7 months ago

An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation

Season 1 Episode 123

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.

Published on 1 year, 7 months ago

An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome

Season 1 Episode 122

Published on 1 year, 7 months ago

An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD

Season 1 Episode 121

Published on 1 year, 7 months ago

An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema

Season 1 Episode 120

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Cen…

Published on 1 year, 8 months ago

An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema

Season 1 Episode 120

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Cen…

Published on 1 year, 8 months ago