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Healing and Advocacy Through the Stitches Doll Project, Part 1 with Kathleen Gerus-Darbison
Healing and Advocacy Through the Stitches Doll Project, Part 1 with Kathleen Gerus-Darbison

In this episode of Beyond the Bleeds, John and Heather talk with Kathleen Gerus-Darbison, a sociology professor and founder of the Stitches Doll Proj…

4 months, 2 weeks ago

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Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part 2
Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part 2

In Part 2 of this Beyond the Bleeds series, John and Heather continue their conversation with Matthew Barkdull, Clinical Supervisor at The Center for…

5 months ago

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Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part I
Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part I

In this episode of Beyond the Bleeds, John and Heather talk with Matthew Barkdull, a Clinical Supervisor at The Center for Change, about the history …

5 months, 2 weeks ago

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Navigating Emotions After a Hemophilia Diagnosis with Donna Varney and Maria Bularz
Navigating Emotions After a Hemophilia Diagnosis with Donna Varney and Maria Bularz

In this episode of Beyond the Bleeds, we talk with Donna Varney and her daughter, Maria Bularz, about navigating emotions after a bleeding disorder d…

6 months ago

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Common Misconceptions About Bleeding Disorders with Andrea Buxton and Sumedha Ghate
Common Misconceptions About Bleeding Disorders with Andrea Buxton and Sumedha Ghate

Today on Beyond the Bleeds, we sit down with Sumedha Ghate, a genetic counselor at HOC, and Andrea Buxton, HOC’s nurse practitioner and clinical dire…

6 months, 2 weeks ago

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Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part II
Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part II

Today on Beyond the Bleeds, we’re again joined by Andrea Buxton and Kristy Schiffer for part two of this heartfelt exploration of family life with a …

6 months, 4 weeks ago

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Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part I
Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part I

Today on Beyond the Bleeds, we sit down with Andrea Buxton and Kristy Schiffer to explore the world of inhibitors in bleeding disorders. We unravel w…

7 months, 1 week ago

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Growing Community and Hope at the National Bleeding Disorder Foundation Conference with Stephanie Paap
Growing Community and Hope at the National Bleeding Disorder Foundation Conference with Stephanie Paap

Today on Beyond the Bleeds, we sit down with Stephanie Paap to delve into the lived experience of attending the National Bleeding Disorder Foundation…

7 months, 3 weeks ago

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The Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn Handrich
The Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn Handrich

Today on Beyond the Bleeds, we sit down with Dr. Brightyn Handrich, DPT, to unravel the essential role of physical therapy in the care of patients wi…

8 months, 1 week ago

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From Bleeds to Birdies with Golf Pro Perry Parker
From Bleeds to Birdies with Golf Pro Perry Parker

Today on Beyond the Bleeds, Heather and John welcome Perry Parker, professional golfer and passionate advocate for the bleeding disorder community. W…

8 months, 3 weeks ago

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