Episode Details

What would you tell yourself on the day you learned your child had Down syndrome?

In this heartfelt episode of DSACO: Up for Discussion, host Sarah Soell welcomes fellow moms for a conversation about raising children with Down syndrome, finding community, and how their expectations have changed over the past two decades.

Together, they reflect on early fears, meaningful friendships, and the moments their children challenged assumptions about what was possible. They also explore what “We Wouldn’t Change a Thing” means while acknowledging challenges and advocating for greater opportunities.

In this episode:

• Looking back on diagnosis day and offering encouragement to new parents.
• Celebrating each child’s personality, passions, and dreams.
• Growing alongside DSACO through childhood, school, and adulthood.
• Challenging stigma, low expectations, and barriers to inclusion.
• Looking ahead to a future with greater belonging and independence.

Whether you’re a new parent, a longtime advocate, or someone wanting to better understand Down syndrome, this conversation offers connection, perspective, and hope.

For Down syndrome resources, programs, and support, visit dsaco.org.