Episode Details

Carol Shrader: Authentic lived experience engagement and the CPChecklist

Carol Shrader is the Cerebral Palsy Program Coordinator at Nemours Children’s Hospital.  

On the pod, Carol speaks passionately about the importance and value of including the voice of people with lived experience within our practice, the significance of knowledge translation and her view of future research priorities.  

Carol also talks us through her education session with Umni Narayanan and Laurie Glader on the Caregiver Priorities – Comorbidities and Health Evaluation Checklist (CPCHECKlist) - a parent-reported tool that captures 25 comorbidities and 13 health technologies for children and young people with severe CP and CP-like conditions.

Recorded LIVE at AACPDM 2026 Philadelphia