Episode Details

This time on CodeWACK! Imagine learning your baby has a brain tumor that’s causing seizures and disrupting her development, then having your insurer repeatedly deny the treatment her specialists recommend. In honor of Childhood Cancer Awareness Month, we’re revisiting this powerful 2024 conversation with Eunice Stallman, MD, a psychiatrist in Idaho and mother of Zoey. Stallman explains how genetic and molecular testing led doctors to recommend Lorlatinib, why the treatment was repeatedly denied as not medically necessary, and the extraordinary advocacy effort it took to finally get the decision overturned. This is Part 1 of a two-part series. Check out the Transcript and Show Notes for more! And please keep CodeWACK! on the air with a tax-deductible donation.