Episode Details

Families are sounding the alarm over a new disability assessment tool that’s wrongly downgrading care needs, risking critical support cuts. One father watched his son’s level drop from high to intermediate care — a shift that could mean fewer caregivers and more strain on families already stretched thin. A mother of a 38-year-old needing round-the-clock help says her life revolves around him, and fears institutionalization if his needs aren’t properly recognized. Advocates argue the interRAI tool isn’t capturing real, complex needs — and warn against funding cuts while changes are being reviewed. These families, now rallying at the Capitol, refuse to back down — determined to ensure every child gets the care they truly require.

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