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Skyclarys Access Battle in Ireland | Dublin News
Description
A groundbreaking new drug for Friedreich’s ataxia, Skyclarys, has been approved in the US and Europe—but Ireland’s HSE is refusing to cover it, citing its steep €280K annual cost and uncertain clinical benefits. Though patients and advocates hail it as a life-changing therapy that could slow disease progression by up to 55%, the HSE’s drug group acknowledged its potential while rejecting reimbursement due to cost-effectiveness concerns. The decision has sparked legal action, as one patient secured High Court permission to challenge the delay—while a final HSE ruling looms in just two weeks.
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