Episode Details

Disability advocates are sounding the alarm as federal and state governments roll back critical community-based services, threatening the independence of people with disabilities. With new federal guidance potentially exempting states from funding non-institutional care, and states citing budget shortfalls to slash programs, families face mounting pressure and tough choices. Rob Stone, a lifelong advocate living with dystonia-parkinsonism, shares his firsthand experience fighting for these rights — even after being removed from Capitol Hill during protests for healthcare reform. While some argue funds should prioritize acute medical needs, advocates insist community care is both a civil right and a smarter investment. As responsibility shifts to individual states, the future of disability support remains uncertain — with a patchwork of protections across the country and the fight for dignity and independence far from over.

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