Episode Details

In this episode of DSACO: Up for Discussion, Sarah sits down with Michelle Sie Whitten, Co-Founder, President and CEO of the Global Down Syndrome Foundation.

Michelle shares how GLOBAL is advancing research, improving healthcare and advocating for individuals with Down syndrome. They discuss the NIH INCLUDE Project, promising areas of research, the work of the Linda Crnic Institute and the Anna and John J. Sie Center, and the resources available to families, self-advocates and professionals.

They also look ahead at the future of Down syndrome research and explore how families can help create meaningful change in their communities.

In this episode:

• The mission of the Global Down Syndrome Foundation
• Why Down syndrome research matters
• The impact of the NIH INCLUDE Project
• Advancements in healthcare across the lifespan
• Resources and support available to families
• Current advocacy priorities and ways to get involved
• Hope for the future of the Down syndrome community

Learn more:

• Global Down Syndrome Foundation
• Michelle Sie Whitten
• NIH INCLUDE Project
• Research and Medical Care Resources
• GLOBAL Medical Care Guidelines for Adults with Down Syndrome
• AAP Health Supervision for Children and Adolescents with Down Syndrome
• DSACO