Episode Details

A Denver family is devastated after their five-year-old son Justin died suddenly on vacation—just five days after his symptoms began. Initially misdiagnosed with appendicitis, doctors struggled to identify the true cause until after his death: Systemic Capillary Leak Syndrome, an ultra-rare disease affecting fewer than 500 people worldwide. Justin’s parents are now sharing his story to warn others, honor his memory, and raise funds for funeral costs and rare disease research—urging everyone to cherish every moment with their children before it’s too late.

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