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Emily’s Fight for Access to Life-Saving Drug | Cork News
Description
A 28-year-old Irish woman, Emily Felix, is suing the HSE to force a final decision on omaveloxolone, a life-changing drug for her rare, progressive disease Friedreich’s ataxia — a condition she’s lived with since age 12. Already approved in several European countries, the drug could slow her disease’s advance, but Ireland’s health service remains stuck in deliberations, risking irreversible damage to her health. With daily mobility challenges and a growing urgency, Emily seeks not just a ruling, but interim access to treatment — and she’s not alone. The High Court has granted her judicial review, with a hearing scheduled for September.
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