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Huntington's Care Pathway Urgently Needed | Cork News
Description
A High Court judge has demanded an urgent national care pathway for Huntington’s disease after a family’s devastating battle with the health system. Their mother, in her sixties, won a €142,000 settlement after years of being misdiagnosed as having psychological issues — her father died unaware he carried the gene, and 26 relatives are now at risk. The judge called the state’s failure “shameful,” citing only one dedicated nurse nationwide and a 2022 proposed pathway still unimplemented. The daughter blamed systemic collapse — no family linkage system, no shared records, no post-diagnosis care — not individual error. The case exposed how a preventable diagnosis led to tragedy, with two symptomatic family members already lost and dozens more left in the dark.
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