Episode Details
Back to Episodes29. Lambert-Eaton Myasthenic Syndrome (LEMS) ft. Lauren Junge
Description
What happens when your own immune system prevents your nerves from properly communicating with your muscles?
This week's episode features my conversation with Lauren Junge, one of the youngest individuals in the United States to be diagnosed with Lambert-Eaton Myasthenic Syndrome (LEMS). Beyond navigating life with this rare neurological condition, Lauren is a college student, researcher, ambassador for rare disease organizations, and founder of a campus club dedicated to raising awareness for rare diseases.
To begin, Lauren explains the fascinating biology behind LEMS. She also shares why childhood-onset LEMS is extraordinarily uncommon and how it differs from similar conditions, such as myasthenia gravis. We also discuss many of the symptoms patients experience, and she shares her perspective on where research in the field is headed and what advances she hopes to see in the future.
Beyond the science, Lauren reflects on growing up with a rare disease, the everyday moments that made her feel different from her peers, and the small acts of kindness and inclusion that had a lasting impact on her. We also discuss how her experiences inspired her to pursue a career in pediatric neurology and create a student organization dedicated to supporting individuals living with rare conditions.
Lauren's story is both educational and inspiring, and I hope this conversation offers a greater understanding of LEMS and how we, as a community, can help support those living with rare neurological disorders.
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Resources:
- https://my.clevelandclinic.org/health/diseases/23202-lambert-eaton-myasthenic-syndrome-lems
- https://rarediseases.org/