Episode Details

For the first time, patients with the rare and devastating Von Hippel Lindau disease are seeing real hope — thanks to a revolutionary drug called Belzutifan, now affordable through Australia’s PBS. Once burdened by endless scans and surgeries, people like Lana Hallowes are now planning futures they once thought impossible — from seeing their kids graduate to meeting grandchildren. While this breakthrough is life-changing, advocates are urging more investment into neuroendocrine cancers linked to VHL, pushing for deeper research and targeted therapies to one day find a cure.

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