Episode Details
Back to EpisodesScott Sherwood on Lily’s Voice, Spelling & the Exhaustion of Being Doubted
Description
David welcomes radiologist and author Scott Sherwood to discuss the exhaustion families feel when non-speaking autistic people’s intelligence, competence, and authorship are constantly questioned. Scott shares Lily’s early autism diagnosis, years of intensive therapies (including ABA and speech methods), and how flawed assumptions and motor demands in testing can misrepresent cognition, especially with apraxia/dyspraxia. He describes discovering RPM at age 12, later pursuing spelling-based communication supports, moving to Atlanta for a larger speller community, and using strategies focused on regulation and motor coaching. They critique skepticism around spelling/FC, shifting goalposts such as message-passing tests, underrepresentation of non-speakers in research, and systemic funding gatekeeping tied to ABA and professional organizations. In “Autism Fact or Fiction,” Scott challenges stereotypes about non-speakers lacking nuance, emphasizing their strong grasp of sarcasm and metaphor. Both end on hope: “sheer numbers” of spellers increasingly sharing their voices.
Topics
00:37 Meet Scott and Lily
04:26 Early Diagnosis and Therapies
06:44 ABA Doubts and Data
09:32 Apraxia and Research Gaps
13:33 Ten Years of ABA
16:54 Listening Without Looking
21:16 Discovering RPM Spelling
25:57 Training and Motor Loops
28:13 Moving to Atlanta for Support
29:37 Hand Over Hand vs FC
30:57 Fading Supports to Keyboard
31:17 Spelling Proof Double Standards
32:17 Autism Fact or Fiction
32:59 Non Speakers Get Sarcasm
34:13 Media Bias and Authorship Claims
37:49 ABA Power and Funding Gatekeepers
41:58 Seeing Spelling in Real Life
43:45 Testing Traps and Goalposts
50:24 Dyspraxia and Regulation Partners
52:34 Autistic Brain Wiring Explained
55:11 Hope Through Sheer Numbers
57:07 Final Takeaways and Wrap