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The Invisible Illness: One Man’s Fight for a Diagnosis
Published 1 day, 12 hours ago
Description
It took over 30 years, but Kris Kinar, a Saskatoon-based construction worker living with EPP, is finally starting to get answers for his rare condition called erythropoietic protoporphyria, which causes intense pain from sun exposure. He met Dr. Amy Yeung, Physician at Massachusetts General Hospital, living with EPP, through a trial at Mass General Brigham, which is seeing great success. The pair join Evan to share their story and what's next in terms of treatment.