Episode Details

Angie Brown, a 47-year-old florist from Bathgate, Scotland, is fighting for access to Tofersen, a drug that could slow her rare form of motor neurone disease. Diagnosed in 2021, Angie has the SOD1 gene variation, which affects about 2% of MND patients. Despite being available for free from Biogen, Scotland is not offering it due to clinic administration issues. Angie, who has a family history of MND, is seeking a clinic in England to access the treatment, as she believes it could let her live longer and better. The My Name is Doddie Foundation supports her cause, describing Tofersen as the first truly effective life-extending option for SOD1 patients.

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