Episode Details
Back to EpisodesDementia Is Terminal – But We Are Not Told How With Theresa Flavin
Description
Theresa Flavin was diagnosed with younger-onset Alzheimer’s Disease at 47. What followed was not just a medical journey, but a profound reckoning with how unprepared our systems are for people living with dementia.
In this deeply moving and confronting conversation, Theresa shares what it felt like to be dismissed, unheard and effectively “managed away” after diagnosis. From being told her diagnosis via dictaphone to discovering that dementia care systems are built around suppression rather than understanding, Theresa speaks with extraordinary clarity about what it truly feels like to live inside a brain that is changing.
We explore behaviour, consent, dignity, palliative care, human rights, and the urgent need for proper pathways after diagnosis. Theresa also shares her powerful moment addressing the United Nations, advocating for cognitive diversity and the rights of people living with dementia.
This episode is not about fear. It is about truth, agency and preparation.
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