Episode Details

Kathy Parry shares her journey as a mother of four whose youngest daughter, Merritt, was born with a severe mitochondrial disorder and ultimately lived 20 years despite an initial two‑year prognosis. She describes navigating an uncertain medical landscape, advocating persistently for her child, and developing a specialized diet that significantly improved Merritt's quality of life. Kathy reflects on the emotional and practical impact on her family—highlighting the deep empathy developed by her other children, the strain on her first marriage, and the joy Merritt brought into their lives. Her experiences led her into speaking, teaching resilience, and encouraging caregivers and professionals to reframe challenges, use empowering language, prioritize wellness, and practice self‑compassion. She emphasizes the importance of competent, compassionate health care and expresses gratitude for caregivers who make profound differences in the lives of people with intellectual and developmental disabilities.