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Parenting a Child with Pulmonary Hypertension w/ Cynthia Neilson
Episode 20
Published 4 months, 3 weeks ago
Description
In this episode of The Caregivers Podcast, host Dr. Mark sits down with Cynthia Neilson to discuss the emotional and practical realities of raising a child with a rare heart-lung condition.
Cynthia shares her journey from the initial shock of a complex diagnosis at SickKids to the "stress tests" of everyday parenting—navigating medical equipment at bedtime, setting boundaries with school, and eventually empowering her daughter, Clare, to become her own advocate. It is a story of resilience, finding peace in the face of uncertainty, and the vital importance of caregiver communities.
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