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Redesigning life with MS. Paola Escamilla Greenham on advocacy, empowerment & purpose
Description
In this episode of the MS Perspektive Podcast, Nele von Horsten speaks with Paola Escamilla Greenham, MS patient advocate and patient experience designer living in Grenoble, France.
Paola shares how her life with multiple sclerosis reshaped her priorities and led her toward patient advocacy across Europe. She talks openly about her diagnosis, the emotional shock that followed, and why joy has become her guiding principle in daily life. The conversation explores the importance of community, lived experience in healthcare design, and Paola's vision for involving patients more meaningfully in MedTech and Biotech innovation.
We also discuss Paola's journey through the EUPATI program, her work as a business angel, and what empowerment truly means when living with a chronic illness.
This episode offers inspiration, honesty, and a strong reminder: living well with MS starts with listening to your body and choosing what brings you joy.
📝 Topics covered in this episode
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Living with MS between Mexico, France, and Europe
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Diagnosis, shock, and patient experience
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Joy, energy, and improvisational theatre
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Patient advocacy and community support
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Lived experience in healthcare design
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Empowerment and future perspectives in MS care
🔗 Links & Resources
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🌍 Learn more about EUPATI: https://eupati.eu
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💼 Connect with Paola on LinkedIn: Paola Escamilla Greenham | LinkedIn
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📖 Read the full blog article: