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843 - The Native Biodata Consortium: Data Sovereignty For Good
Description
About this episode:
Since the mapping of the human genome in 2003, scientists have sought data from Indigenous and isolated populations. But often that research doesn’t translate into better health care for the groups whose biological specimens informed it. In this episode: all about the Native Biodata Consortium, a research organization that collects, stores, and shares data from indigenous environments and communities.
Guest:
Joseph Yracheta, Pūrepecha, is a biomedical researcher and the executive director of the Native Biodata Consortium.
Host:
Dr. Josh Sharfstein is vice dean for public health practice and community engagement at the Johns Hopkins Bloomberg School of Public Health, a faculty member in health policy, a pediatrician, and former secretary of Maryland’s Health Department.
Show links and related content:
-
Rapid Acceleration of Diagnostics (RADx)—The National Institutes of Health
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Native Americans Graves Protection and Repatriation Act—National Park Service
- Tribal Data Repository—Data for Indigenous Innovations, Interventions and Implementations
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