Episode Details

Conhecer os resultados negativos de um estudo científico é tão importante quanto conhecer seus resultados positivos.

Como saber se ele foi conduzido de forma eticamente correta?

Confira no papo entre o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.

> OUÇA (58min 36s)

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Naruhodo! é o podcast pra quem tem fome de aprender. Ciência, senso comum, curiosidades, desafios e muito mais. Com o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.

Edição: Reginaldo Cursino.

http://naruhodo.b9.com.br

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PARCERIA: ALURA

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Aproveite o desconto de R$100 para ouvintes Naruhodo no link:
https://www.alura.com.br/promocao/naruhodo

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REFERÊNCIAS

What is Patient and Public Involvement in health and social care research?
https://www.rds-sc.nihr.ac.uk/ppi-information-resources/

Health PEI Public and Patient Engagement
https://www.princeedwardisland.ca/en/information/health-pei/health-pei-public-and-patient-engagement

REMARKS BY THE PRESIDENT IN APOLOGY FOR STUDY DONE IN TUSKEGEE
https://clintonwhitehouse4.archives.gov/textonly/New/Remarks/Fri/19970516-898.html

Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel
https://biotech.law.lsu.edu/cphl/history/reports/tuskegee/complete%20report.pdf

AP WAS THERE: Black men untreated in Tuskegee Syphilis Study
https://apnews.com/article/business-science-health-race-and-ethnicity-syphilis-e9dd07eaa4e74052878a68132cd3803a

The Discovery of Penicillin—New Insights After More Than 75 Years of Clinical Use
https://wwwnc.cdc.gov/eid/article/23/5/16-1556_article

Brain health and its social determinants
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)02085-7/fulltext

Development and validation of an instrument to measure patient engagement in Hong Kong Special Administrative Region, China
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6129019/

Realist evaluation of public engagement and involvement in data-intensive health research
https://link.springer.com/article/10.1186/s40900-020-00215-4

Developing patient reference groups within general practice: a mixed-methods study
https://bjgp.org/content/65/632/e177.short

Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
https://onlinelibrary.wiley.com/doi/full/1