Episode Details

In this heartfelt episode of PeDRA Pearls, we shine a spotlight on congenital melanocytic nevi (CMN)—a rare and often misunderstood skin condition present at birth. Tune in to hear Maggie, a physician and mother whose son Reid was born with a giant CMN, and Dr. Harper Price, Division Chief of Pediatric Dermatology at Phoenix Children’s Hospital, as they explore the emotional journey from diagnosis to advocacy, the medical complexities of CMN, and the urgent need for accurate information and coordinated care. You'll also learn about the groundbreaking Nevus Owners Outcomes Registry (NOOR), a collaborative effort between Nevus Outreach and PeDRA that’s paving the way for patient-centered research and improved outcomes for families everywhere.