Episode Details

Join us in a conversation with Charlotte Nordin, mother of 13 year old Vera who was born with Cornelia de Lange Syndrome (CdLS). Charlotte shares her journey as a mother, finding meaning and how this gift has opened her heart. Charlotte shares the challenges, spiritual perspectives and practical ways to find balance in the day to day.

You can watch this podcast in video format on our YouTube Channel: https://www.youtube.com/@CanadianCdLSFoundation

You can follow Charlotte Nordin in Instagram here: https://www.instagram.com/charlotte.nordin?utm_source=ig_web_button_share_sheet&igsh=MXh6NnRlNHh5OXY1ZQ==

You can listen to Charlotte and Vera's album here: https://hummusrecords.bandcamp.com/album/celle-que-je-suis

If you would like to donate to continue bringing you stories, content and information we would be grateful: https://www.canadiancdlsfoundation.com/donate

Would you like to a guest on the show? Email us at support@canadiancdlsfoundation.com and we would love to hear your story helping others not feel so alone of bringing valuable expertise and experience to families, clinicians and their community.

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Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation.

Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection for everyone affected by Cornelia de Lange Syndrome.

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