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How an ADHD diagnosis was lost and found again (Nikki Daye’s story)

How an ADHD diagnosis was lost and found again (Nikki Daye’s story)

Episode 106 Published 1 year, 3 months ago
Description

Nikki Daye, a school psychologist and ADHD advocate, grew up in the foster care system. She was diagnosed with ADHD as a child, but her medical records were eventually lost. As she got older, her ADHD diagnosis wasn’t considered. Instead, her symptoms were misdiagnosed as anxiety, PTSD, and bipolar disorder. 

While her ADHD diagnosis was “lost in translation,” Nikki spent a lot of time feeling misunderstood and unsupported. It wasn’t until adulthood that she finally got the clarity she needed. Now, she’s using her experience to advocate for kids with ADHD, including her own daughter.

Related resources

Timestamps

(01:18) Nikki’s first ADHD diagnosis as a teenager

(03:30) Nikki’s experience with echolalia 

(05:27) ADHD treatment, speculating other diagnoses, and medical records being lost while in foster care

(09:11) “Aging out” of her ADHD diagnosis, and coming back to it

(15:08) Nikki’s intersectional “aha” moments 

(20:33) Nikki’s work helping kids like her, and her daughter

For a transcript and more resources, visit the ADHD Aha! show page on Understood.org

We love hearing from our listeners! Email us at adhdaha@understood.org or record a message for us here

As kids head back to school, it's a good time to remember: not every student experiences the classroom the same way. Through My Eyes, a free interactive experience from Understood, lets you step into a day in the life of a kid with ADHD, dyslexia, or dyscalculia. See their strengths and challenges in a whole new way. Try it out here.

Understood.org is a nonprofit organization dedicated to empowering people with learning and thinking differences, like ADHD and dyslexia. If you want to help us continue this work, donate at understood.org/give


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