Episode Details

We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders.  We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film.  This is a crossover episode with Bendy Bodies with Hypermobility MD, Dr. Linda Bluestein.  You can learn more about the documentary at MCASfund.org.

Chapters

00:00 Introduction

00:37 Creating Awareness and Increasing Treatment Options

03:09 The Birth of the Documentary Project

05:20 Filming in New York

07:19 Filming in St. Louis

10:32 The Motivation to Work with Complex Patients

15:49 The Journey of Recognizing MCAS

17:34 The Impact of MCAS Treatment

21:00 Personal Experiences and Incorporating MCAS Treatment

22:42 The Need for an Educational Library

25:29 The Challenge of Condensing Information

26:21 Describing MCAS in Sound Bites

31:10 The Importance of Raising Awareness

34:42 Growth and Development Abnormalities in MCAS

40:03 Main Points about Hypermobility Syndromes and Dysautonomia

44:48 Partnership with LDN Research Trust

51:47 Final Words and Call for Support

54:26 Recognition and Treatment of Unrecognized Patients

55:44 Importance of Learning and Trying

56:13 Gratitude for Dedicated Doctors

56:47 Closing Remarks and Resources

You can learn more about the physicians in this episode at:

https://aimcenterpm.com/ for Dr. Tania Dempsey and Dr. Lawrence Afrin

https://www.gidoctor.net/leonard-weinstock-md for Dr. Leonard Weinstock

https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md for Dr. Laurence Kinsella

Listen Now