Episode Details

In this episode, since most podcasts “podfade” by episode 7 (and since this is #7 if you count our trailer episode) we honor the podcasts that helped us get started, from the friendly podcasters who offered advice to those who offered air time. A big shout out is due to Carolyn Kiel of Beyond 6 Seconds, Anne Marie Cannon of Armchair Historians and Mathew Passy of Causepods (links to each show are below this intro).

This episode is special in another way. I explore the difficulties experienced by those diagnosed with rare diseases as I interview my father-in-law, Robert Bellizzi. Bob is the Executive Director and Founder of The Corneal Dystrophy Foundation. He started this not-for-profit organization back in 1998 as a grass-roots patient to patient online support group called Fuchs’ Friends. This platform provides resources that did not exist, trailblazing a platform that enabled patients to support one another. Fuchs’ Friends and The Corneal Dystrophy Foundation now serves patients in over 150 countries and has a current membership of approximately 3000.

Guest Website: Corneal Dystrophy Foundation: https://www.cornealdystrophyfoundation.org/

Podcasts Acknowledged: Beyond 6 Seconds, Hosted by Carolyn Kiel: https://www.beyond6seconds.net/

Armchair Historians, Hosted by Anne Marie Cannonhttps://www.armchairhistorians.com/

CausePods, Hosted by Mathew Passy https://causepods.org/podcast/live-well-by-doing-goodwith-corinna-bellizzi-of-the-care-more-do-better-podcast/

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