Season 1 Episode 133
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews patient advocate Maureen Juip of Grosse Pointe, Michigan. Juip, newly appointed secretary of the Friedreich's Ataxia Research Alliance (FARA), is also the mother of 2 children with the rare neuromuscular disease.
Published on 1 year, 4 months ago
If you like Podbriefly.com, please consider donating to support the ongoing development.
Donate