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The Dubious Consent Question At The Heart Of The Human Genome Project

The Dubious Consent Question At The Heart Of The Human Genome Project


Episode 1094


The Human Genome Project was a massive undertaking that took more than a decade and billions of dollars to complete. For it, scientists collected DNA samples from anonymous volunteers who were told the final project would be a mosaic of DNA. Instead, over two-thirds of the DNA comes from one person: RP11. No one ever told him. Science journalist Ashley Smart talks to host Emily Kwong about his recent investigation into the decision to make RP11 the major donor — and why unearthing this history matters to genetics today.

Read Ashley's full article in Undark Magazine here.

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Published on 1 year, 5 months ago






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