Episode Details

As the Mom & Doc Talk Podcast takes a break over the summer, we are excited to re-air some of our most popular episodes! In episode #6 "Chasing a Diagnosis", Jody shares all of the steps she took to get a diagnosis of PANS. It took a lot of doctors, a lot of medications, and some seriously challenging things for Jody.

Some of the things we cover are:

• Expecting to see answers on an MRI and bloodwork
• Asking for help from a provider that doesn’t “believe” in PANDAS or denies that it is real, even when there are positive tests for an infection with no typical signs of an infection
• Providers still denying it, even when the antibiotics they prescribed get rid of all symptoms
• Finding out a cough was a tic
• Never-ending referrals to more specialists who don’t have answers but won’t talk about PANDAS
• Never-ending antibiotics that have diminishing returns
• Jody felt like maybe she was crazy and nothing was wrong, especially as doctors kept offering her excuses for why these sudden changes in her daughter were normal
• Tonsils and adenoids and whether to remove them
• Being told she didn’t have PANDAS even when strep was found and titers were elevated
• Deciding to do the Cunningham panel (more details in the next episode!)
• The frustration of seeing all the different providers and treating everything as if they were separate issues even though they came on all together
• The challenge of taking a kid who could “hold it together” in the doctor’s office, making it look like Jody was crazy or making things up, and getting accused of Munchausen-by-proxy

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As always, we invite you to be our partners in advocacy and education by following, sharing, rating, and reviewing. Together, we can teach the world about PANS/PANDAS and homeopathy!

If you want a place for support, join our FB group: Homeopathy For Pans & Pandas: https://www.facebook.com/groups/PANDAShomeopathy

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You can also email us at podcast@resiliencenaturopathic.com