Episode Details

Scott Reich shares his heartfelt journey of founding the nonprofit organization Believe in a Cure with his wife Ilissa, dedicated to finding a cure for Fox G1 syndrome. He opens up about his personal experience following his son's diagnosis, the challenges faced in seeking information and support, and how they overcome these obstacles.

Scott emphasizes the importance of building a strong team, having a clear mission, and fostering partnerships and collaborations to drive progress.

Don't miss this inspiring conversation filled with insights and actionable advice for anyone passionate about making a difference in the world of rare diseases.

🔗 Support Believe in a Cure: https://www.webelieveinacure.org/