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#54 Denise Pihas on recovering from onset in an (almost) teen, and grassroots hospital advocacy
Description
Today we are joined by Denise, who shares her daughter's experience with PANS onset at age 12. We also talked about her continued advocacy for the pans community beyond her daughter's recovery. We touch on:
A PANS case that involved seizures
The challenge in finding a diagnosis, especially when all of your labs look normal
Navigating sensitive PANS case that is responding poorly to things that should be helping
The difference in working with a homeopath versus other provider types
Dealing with people who didn’t believe what her family was experiencing
The impact (and trauma) of the later onset of PANS
Victories big and small
What helping her daughter navigate through PANS and recovery taught her about herself
The gift that PANS can end up being in the long run
Establishing a pediatric inflammatory brain disorders center in her local children’s hospital
The ways parenting and relationships had to shift as her daughter healed and became an adult
Advice for parents with teens that are still struggling with PANS
Denise references the long version of her story that you can find in our Facebook group here
You can hear Isabella’s personal experience on Episode 19 on Spotify and YouTube
If you want a place for support, join the group that we talked about: Homeopathy for PANS & PANDAS: https://www.facebook.com/groups/PANDAShomeopathy
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You can also email us at podcast@resiliencenaturopathic.com