Episode Details
Back to Episodes368. A Father's Fighting Chance Against Duchenne Muscular Dystrophy: Mazi Keyghobadi
Description
What's life? What kind of world are we leaving for our children? Mazi Keyghobadi shares his battle against muscular dystrophy for his son's future. He believes you need to speak your mind and contribute! He is leading by example.
There's only one other person that has the rare form of muscular dystrophy that Mazi Keyghobadi's son has. It wakes up part of you you never knew existed. In this heart-stirring episode of Better Call Daddy, we meet Mazi Keyghobadi, a father whose love knows no bounds. Mazi is the co-founder of Hope for Luka, a nonprofit organization named after his seven-year-old son, who battles a rare form of muscular dystrophy. With the tenacity of a warrior and the heart of a lion, Mazi shares his family's journey through the trials and tribulations of seeking a chance for Luca to live a normal life.
Mazi's story is one of sacrifice, determination, and the relentless pursuit of hope. From selling his car to pouring his life savings into research, he embodies the spirit of a parent who will stop at nothing to give his child a fighting chance. His quest leads him to the forefront of scientific research, where he collaborates with leading experts and navigates the complex world of fundraising and advocacy.
But this episode is more than just a tale of a father's love. It's a call to action for anyone with a dream, a reminder that sometimes the most significant victories come from the heart. Mazi's message is clear: see the strength in those who fight battles unseen, hear their voices, and appreciate the heroes who live among us.
Join Reena Friedman Watts as she delves into the depths of a father's soul, exploring the power of unwavering faith and the beauty of a bond that defies all odds. Better Call Daddy: The Safe Space for Controversy.
Connect with Mazi and support his mission at hopeforluka.org, and be part of the movement that champions the extraordinary lives of children like Luca.
Go Fund Me page
https://www.gofundme.com/f/raising-130k-to-fund-preclinical-research-study
Mazi on Linkedin
https://www.linkedin.com/in/mazi-keyghobadi-55a92493/
PPMD (Parent Project Muscular Dystrophy)
https://www.parentprojectmd.org
TREAT-NMD is a global network of experts in the neuromuscular field
Better Call Daddy: The Safe Space for Controversy.
Connect with Reena:
https://linkedin.com/in/reenafriedmanwatts
https://twitter.com/reenareena