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My Story About Pans Pandas | Regulation First Parenting™ | E84
Description
My Story About PANS/PANDAS: Hope, Healing, and Nervous System Regulation
When your child changes overnight—becoming anxious, angry, rigid, or emotionally explosive—it can feel terrifying and isolating. I know that feeling personally.
In this episode, I share my story about PANS/PANDAS, including my son Max’s journey through chronic Lyme disease, neuroinflammation, emotional dysregulation, and healing. I want parents to know this: even when things feel impossible, there is hope.
Healing is possible when we calm the brain first and support the nervous system consistently.
In this episode, you’ll learn:
• how PANS/PANDAS symptoms can appear suddenly
• the connection between infections and Emotional Dysregulation in Children
• why healing requires a nervous-system-first approach
• practical supports that helped our family regulate and recover
The beginning of Max’s story
My son Max was bitten by a tick at just 22 months old, though we didn’t realize it at the time.
Soon after, everything changed.
He developed:
• emotional outbursts
• irritability and rage
• poor sleep
• restrictive eating
• anxiety and dysregulation
The child we knew suddenly seemed different overnight.
At the time, many people didn’t understand how tick-borne illness and inflammation could impact behavior, mood, learning, and regulation.
But behavior is communication—and Max’s nervous system was overwhelmed.
What we learned about PANS/PANDAS
PANS/PANDAS often looks like:
• Anxiety in Children
• ADHD and Emotional Dysregulation
• OCD symptoms
• school refusal
• sensory overload
• rage and aggression
• cognitive regression
The key difference is how suddenly symptoms appear.
Kids can lose previously mastered skills almost overnight because inflammation affects the brain directly.
It’s not bad parenting—it’s a dysregulated, inflamed brain.
Healing is a marathon, not a sprint
One of the biggest lessons I learned is this:
Healing doesn’t happen from one single treatment.
Recovery requires:
• calming the nervous system
• reducing inflammation
• behavioral and parenting support
• emotional regulation tools
• consistent routines and co-regulation
Supportive therapies may include:
👉 neurofeedback
👉 PEMF
👉 nutrition and supplements
👉 psychotherapy and parenting support
👉 nervous system regulation tools
Why nervous system regulation matters
Kids with PANS/PANDAS often live in chronic fight-flight-freeze mode.
That can create:
• Meltdowns in Children
• emotional flooding
• impulsivity
• sleep disruption
• oppositional behaviors
That’s why Nervous System Regulation in Children must come before correction or behavior management.
When we regulate first, kids gain access to learning, coping, and connection.
What helped Max most
Several things made a meaningful difference in Max’s healing journey:
👉 removing inflammatory triggers like dairy
👉 consistent neurofeedback
👉 PEMF for calming the nervous system
👉 herbs and supplements
👉 homeschooling during flares
👉 structured routines and emotional supp