Episode Details

This episode is sponsored by Sophie's Neighborhood https://www.sophiesneighborhood.org/, a nonprofit dedicated to fundraising for research into the development of an effective treatment or cure for an ultra rare genetic disorder:  Multicentric Carpotarsal Osteolysis (MCTO). What do you do when your child is diagnosed with a rare, destructive disorder? What if you were told she was one of 30 others in the world identified with the disease and there was no treatment? Head to https://www.sophiesneighborhood.org/ to learn more.