Episode Details

Back to Episodes

Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

Episode 98 Published 3 years, 5 months ago
Description

I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.

In this episode, you’ll learn:

  • What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
  • What kind of caregiver response really helps (sometimes) 
  • How the Dysregulation - Shame Cycle feels

Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout

Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/

Underneath every behavior is something happening in the body, specifically in the nervous system. When we support the body first, behavior often begins to shift. Even for kids who don't have a sensory processing disorder! 

Join my March 24th webinar at 8pm eastern- Sensory Strategies for Dysregulated Kids with Baffling Behaviors

RobynGobbel.com/SensoryWebinar

:::



Let's hang out this summer at two different trainings for professionals!

Therapy with Kids with Big, Baffling Behaviors- June 1 & 2 in Syracuse, NY RobynGobbel.com/NY

Presence in Practice- July 15, 16, & 17 in Rockford, MI (outside Grand Rapids) RobynGobbel.com/Michigan2026

Get access to over 25+ free resources in our brand, new Free Resource Hub! RobynGobbel.com/FreeResourceHub

:::

Grab a copy of USA Today Best Selling book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book

Join us in The Club for more support! robyngobbel.com/TheClub

Sign up on the waiting list for the 2027 Cohorts of the Baffling Behavior Training Institute's Immersion Program for Professionals robyngobbel.com/Immersion

Follow Me On:
Facebook
Instagram

Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)

Listen Now

Love PodBriefly?

If you like Podbriefly.com, please consider donating to support the ongoing development.

Support Us