Episode Details
Back to EpisodesEp. 98: From the Inside Out- My husband's journey with a neuroimmune condition
Description
I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.
In this episode, you’ll learn:
- What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
- What kind of caregiver response really helps (sometimes)
- How the Dysregulation - Shame Cycle feels
Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout
Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/
Underneath every behavior is something happening in the body, specifically in the nervous system. When we support the body first, behavior often begins to shift. Even for kids who don't have a sensory processing disorder!
Join my March 24th webinar at 8pm eastern- Sensory Strategies for Dysregulated Kids with Baffling Behaviors
RobynGobbel.com/SensoryWebinar
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Therapy with Kids with Big, Baffling Behaviors- June 1 & 2 in Syracuse, NY RobynGobbel.com/NY
Presence in Practice- July 15, 16, & 17 in Rockford, MI (outside Grand Rapids) RobynGobbel.com/Michigan2026
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Grab a copy of USA Today Best Selling book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book
Join us in The Club for more support! robyngobbel.com/TheClub
Sign up on the waiting list for the 2027 Cohorts of the Baffling Behavior Training Institute's Immersion Program for Professionals robyngobbel.com/Immersion
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Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)