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Valerie is thriving in law school after a life-threatening reaction to medication

Valerie is thriving in law school after a life-threatening reaction to medication


Season 4 Episode 274


Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since.  Valerie's advice to other patients with many sensitivities is to consider getting pha…


Published on 8 hours ago

Dr. Jeffrey Boris on the genetic landscape of POTS

Dr. Jeffrey Boris on the genetic landscape of POTS


Season 4 Episode 273


Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS.  Here he explains his team's new findings about the genetic signals found in pediatric POTS patients:   What…


Published on 6 days, 18 hours ago

12th Annual 5k/2k Invitation

12th Annual 5k/2k Invitation


Season 4


Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH.  More inf…


Published on 1 week ago

POTS Diaries with Mackenzie from Massachusetts

POTS Diaries with Mackenzie from Massachusetts


Season 4


Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book.  In this episode she describes her journey, including how a TikTok video…


Published on 2 weeks ago

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS symptoms “down there” with Dr. Tania Dempsey


Season 4 Episode 269


MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and m…


Published on 3 weeks, 1 day ago

Bria from Wales, a professional patient rights advocate

Bria from Wales, a professional patient rights advocate


Season 4 Episode 270


Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis.  Bria is still looking for bett…


Published on 4 weeks, 1 day ago

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan on long COVID, micro-clots and more


Season 4 Episode 269


Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself.  Now retired due to chronic illness, he is a leader in patient advocac…


Published on 1 month ago

POTS Diaries with Randi:  Surgical nurse, stoic and survivor

POTS Diaries with Randi: Surgical nurse, stoic and survivor


Season 4


Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more…


Published on 1 month, 1 week ago

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild


Season 4 Episode 267


Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutane…


Published on 1 month, 2 weeks ago

Kai, on living with profound ME/CFS

Kai, on living with profound ME/CFS


Season 4


Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing ba…


Published on 1 month, 3 weeks ago





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