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Live from the 12th annual Run for Research - interviews with participants

Live from the 12th annual Run for Research - interviews with participants


Season 4 Episode 283


Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients.  We interviewed several participant…


Published on 10 hours ago

Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more

Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more


Season 4


Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel …


Published on 1 week ago

Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters

Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters


Season 4


Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Unde…


Published on 2 weeks, 2 days ago

Tristan, from hiking, skating and EMT training to a looong wait

Tristan, from hiking, skating and EMT training to a looong wait


Season 4


Tristan was an avid hiker, skate boarder and EMT-in-training when his world suddenly started spinning. Although his doctor diagnosed POTS and referred him to a top specialist, he has been waiting two…


Published on 3 weeks, 2 days ago

Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments

Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of POTS, genetics and novel treatments


Season 4


Dr. Kendal Stewart, former skull surgeon, now specializes in addressing root causes of neuroimmune conditions like POTS.  In this episode he discusses seeing 'hypo-adrenergic' POTS, the underlying ge…


Published on 4 weeks, 2 days ago

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing


Season 4


Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME…


Published on 1 month ago

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert


Season 4


Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Directo…


Published on 1 month, 2 weeks ago

Taylor’s pleasure cruise that turned into another journey

Taylor’s pleasure cruise that turned into another journey


Season 4 Episode 276


Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions a…


Published on 1 month, 2 weeks ago

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters


Season 4


Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Con…


Published on 1 month, 4 weeks ago

Valerie is thriving in law school after a life-threatening reaction to medication

Valerie is thriving in law school after a life-threatening reaction to medication


Season 4 Episode 274


Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since.  Valerie's advice to other patients with many sensitivities is to consider getting pha…


Published on 2 months ago





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