Podcast Episodes

Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother

Episode 17

In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heart…

5 hours ago

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Ep. #16 💜 Family Series: Maria Watkins & Ella- "Life on M Avenue"

Episode 16

Maria Watkins is a mother of five children, their middle child Ella was born with CdLS. Her and her husband live near Sioux City, Iowa, USA. They hav…

5 months, 2 weeks ago

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Ep. #15 - 💜 Family Series: Dawn Seitz Rauscher - Team Nikki

Join us for a conversation with Dawn Seitz Rauscher as she shares her journey and  her life with Nikki who passed away ten years ago at the age of 17…

7 months ago

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Ep. #14 -💜🏥 Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS

Episode 14

Join us for a webinar presented by Dr. Peggy Marcon M.D. and Kelsey Gallagher R.D. of Sick Kids Toronto at the US CdLS Virtual Conference in 2020 whe…

8 months, 1 week ago

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Ep. #13 - 💜 Family Series: Remembering Tami — A Father’s Story, GI Complications & Advocacy in CdLS

Episode 13

In this deeply personal episode of CdLS Connections, Ken Pfalzgraf shares the life and legacy of his daughter Tami, who passed away at age 18 in late…

8 months, 4 weeks ago

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Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel

Episode 12

A fellow CdLS dad, Gary sits down with Edgar to hear a father's perspective on having a child with Cornelia de Lange Syndrome (CdLS). Edgar, original…

9 months, 3 weeks ago

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Ep.#11 - 💜 Family Series: Charlotte Nordin - A Mother's Journey & Vera

Episode 11

Join us in a conversation with Charlotte Nordin, mother of 13 year old Vera who was born with Cornelia de Lange Syndrome (CdLS). Charlotte shares her…

9 months, 3 weeks ago

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Ep.#10 - 💜 Family Series: Majda Ficko - A Mother's Journey & Dimitre's Legacy

Episode 10

Dimitre was born in 1997 and was diagnosed with Cornelia de Lange Syndrome shortly after birth. Dimitre's mom Majda Ficko shares her life with her so…

1 year, 4 months ago

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Ep.#9 - 💜 Family Series: Emily Turner - Brave Heart - Warrior Spirit

Episode 9

Join us for a conversation with Emily Turner at the recent US CdLS Foundation Eastern retreat in Oxford, Pennsylvania. Emily shares her journey to in…

1 year, 5 months ago

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Ep.#8 - 💜 Family Series: Brenda King - Molecular Testing at Age 33- Leanna's Story

Episode 8

Join us to hear the story of Leanna who has lived with the diagnosis of CdLS for over 30 years. Only last year at the age of 32 did Leanna receive mo…

1 year, 7 months ago

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